‘Hutspot’
Hutspot is a Dutch dish and is a mash of carrots, potatoes, onion and meat. In other words, a hutspot of topics. I thought it was appropriate for a ‘hutspot’ of my roamings that I want to share with you that I thought might be of interest.
Journal – Disability and Rehabilitation
Myalgic encephalomyelitis/chronic fatigue syndrome and the biopsychosocial model: a review of patient harm and distress in the medical encounter
Keith J. Geraghty & Charlotte Blease
Received 28 Mar 2017, Accepted 22 May 2018, Published online: 21 Jun 2018
Content: In this review article, the objective was to bring to light how people with ME/CFS reported distress and dissatisfaction following their medical encounters. It explains the methods used and what the results were.
For details, please go to:
The American Journal of Bioethics
What’s in a Name? The Ethical Importance of Respecting a Patient’s “Unexplained” Medical Concerns
Pages 1-2 | Published online: 26 Apr 2018
In this Guest Article, the authors relate how it has become evident that labelling certain conditions as having a biological cause and others having a primarily psychosocial cause is ‘outdated’ and ‘reductionistic.
U.S. National Library of Medicine
ClinicalTrials.gov
There are 144 studies under the title of chronic fatigue syndrome and Myalgic Encephalomyelitis, some are completed and others are recruiting and several are unknown, according to the National Institutes of Health (NIH)
To view, please go to:
frontiers in Pediatrics – Pediatric Neurology
Onset Patterns and Course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Lily Chu etal – February 5, 2019 (Stanford ME/CFS Initiative
The objective of this research article was to describe ME/CFS onset and its course in one U.S.-based cohort using 150 subjects fitting Fukuda 1994 CFS criteria. The article highlighted the underexamined aspects of ME/CFS and propose new interpretations of findings.
BMC – Journal of Translational Medicine
Diagnostic sensitivity of 2-day cardiopulmonary exercise testing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Maximillian J. Nelson etal March 14, 2019
16 ME/CFS patients and 10 healthy controls underwent two cardiopulmonary exercise tests (CPET0 on 2 consecutive days.
For tables and details, please go to:
frontiers in Neurology
Neuroinflammation and Cytokines in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Critical Review of Research methods
In this review, 3 specific methods were used to study the neuroimmunology of ME/CFS, namely PET (positron emission tomography), MRS (magnetic resonance spectroscopy) and assays measuring cytokines in blood and cerebrospinal fluid.
This study focuses on what these methods can and cannot conclude.
For details, please go to:
